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Epilepsy Community Resources

Finding help for epilepsy can be hard, but UCI Health is here for you. This page contains a list of resources where you can get support for managing epilepsy and staying healthy.

Health Resources

  • Complete care center for patients with diabetes. Offers: diagnosis treatment, monitoring, and education.
  • For scheduling, a referral from PCP or neurologist is typically requested and records can be faxed to 714-456-6908.
  • Clinic: 714-456-6203
  • Nurse Jessica’s office: 714-456-3414
  • For more info visit the UCI Health epilepsy page

 

  • Nonprofit with a focus on seizures and seizure control
  • Offers education, advocacy, support, and encouragement for those living with epilepsy and their families
  • Location: 1500 Adams Ave #301 Costa Mesa, CA 92626
  • Phone: 714-916-0456
  • For more information, please visit: www.esnoc.org

 

  • Nationwide foundation that promotes education, policy and research to assist people living with epilepsy 
  • Resources include support groups (both virtual and in-person) and a tool to find epilepsy specialists and centers
  • Local Contact Information: orangecountyca@efa.org
  • For more information, please visit: www.epilepsy.com

 

  • Also on Facebook and Twitter 
  • Provides informational support and support groups for caregivers, not all specifically related to epilepsy 
  • Master list of resources, associations, and foundations related to various illnesses and conditions on website
  • For more information, please visit: www.365caregivingtips.com

 

  • An initiative to help those who can’t speak put their art to music 
  • You can submit artwork on the website, and it will turn it into a song 
  • Great resource for expression for those who are nonverbal at baseline, as well as for stroke survivors who can no longer communicate verbally
  • For more information, please visit www.unspokensymphony.com
 

 

  • A community that provides education, support and information 
  • Resources include virtual education and support groups, in-person events and meetings, conferences, a mentor program, and informational articles and guides to help parents and caregivers navigate getting help
  • For more information, please visit: www.tacanow.org

 

  • Website has resources to find epilepsy centers, patient resource pages, and frequently asked questions
  • Collection of additional resources related to learning more about different types of epilepsy and seizures and help with care
  • For more information, please visit: www.naec-epilepsy.org
 

 

  • Offers programs, services, and advocacy for individuals living with epilepsy and their families
  • Seizure recognition and first aid training for school personnel
  • Resources for OnDemand and Live training available 
  • For more information please visit: www.epilepsyallianceamerica.org

 

National Coordinating Center for Epilepsy (American Academy of Pediatrics)

  • Website offers information, tools, and resources for epilepsy and seizures in children
  • Has recommendations and guidelines for learning more about pediatric epilepsy and resources for technical assistance
  • For more information, please visit: www.aap.org/en/patient-care/epilepsy
 

The Connected Parent

  • A database for families to find local and online resources and services related to rare diseases, autism, and disabilities in one place 
  • You can search for, add, and review medical specialists, occupational therapists, respite care providers, speech therapists, and more
  • For more information, please visit: www.theconnectedparent.net

 

Magnolia Paws for Compassion

  • Website for the training and placement of service dogs
  • Partnered with the Epilepsy Foundation and 4 Paws for Ability to raise awareness of the benefits that service and therapy dogs can provide to those with epilepsy or seizure disorders 
  • Therapy dogs spend time with patients to alleviate physical and emotional illness-caused stress 
  • For more information, please visit: www.magnoliapawsforcompassion.com

Domesti-PUPS Service Dogs

Organization that provides therapy dogs, service dogs, and obedience trained rescue dogs
Customized training for patient needs
Ongoing support and guidance with each service dog placed
Email: info@domesti-pups.org

For more information, please visit: www.domesti-pups.org